Thursday, January 10, 2013

Reality Check 101

First, I want to thank everyone for the prayers and support we continue to be blessed with. The love we feel from everyone has enabled the whole family to be sustained during this time.

Today, based on blood work done this morning, Xander will start to receive blood products again. Today, his hemoglobin was below 8 (normal is 12.5-16). He will get one or two units of packed red blood cells (PRBC).

In a odd twist of date, We were really lucky that Susie was in the transfusion clinic. For those following Xander's blog since the beginning, Susie was our first transfusion nurse almost one year ago. She was awesome the and her awesomeness now is even greater.

Dr. Connelly and Chastity devoted about an hour during clinic to discuss the many possible steps we may take in the near future. We discussed Dr. Neuenschwander - Xander's new Integrative Health practitioner and how Dr. Neu's protocols would interact with Xander's treatments. Frankly, I must admit that I was surprised with Dr. Connelly's apparent openness with Dr. Neu's recommendations. Upon further discussion, it seems that we are not exactly on the same page, but we are closer.

Emilie just walked in, so I will post more later and talk with her now before my afternoon clients.

Peace and love to all our supportive friends and family.


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