As I previously blogged, Thursday morning Xander had his first detectable white blood cell count of 200. It would have be a blessing if on Friday he saw a gain or at least held the level. Well… on Friday Xander's WBC count did go up AND held his hemoglobin. Xander did NOT need to get packed red blood cells on Friday! Dr. Kitko an Dr. Tran declaired that Xander to be engrafting as of Friday ♥.
But wait there is more… and here it is… without any further ado… ;-}
This weekends results are so incredible that you need to be sitting down - don't read the next line while driving… As of day +12 Xander has a white blood cell count (WBC) of 2900 with an absolute neutrophil count (ANC) of 1600 AND his hemoglobin is showing recovery (10.4). Xander has been blessed with no fevers (afebrile) and no symptoms of graft versus host disease (GVHD). Xander did get platelets this morning due to falling below the transfusion threshold, but not because of a big drop. Xander actually has been statistically holding platelets for two days.
Dr. Kitko used the "D" word - DISCHARGE - maybe mid next week after Dr. Connelly rotates on if trends keep up without complications. Dr. Kitco ordered the switch from IV tacrolimus (anti-rejection drug) to oral. The first 24 hours of the switch have been fine. We are still taking it one day at a time but I am so thrilled in every nook and cranny of my being - Xander's future is yet to be determined but I am just excited he may have a future. Still, Emilie and I work hard to enjoy each day and show thanks for what we are blessed with.
The mornings seem to be starting out a little rough but improve by late morning. It is not unexpected that Xander does not feel at the peak of his game in the mornings. With a little more time and no more chemo drugs the overwhelming yucky feeling that he has everyday should begin to subside. Monday morning at 9 Xander will get the last dose of scheduled chemo. In the mean time we will take advantage of the anti-emetics that are available. Dr. Kitko has moved Xander over to oral Kytril from IV phenergan in preparation to go HOME. Xander will still need IV magnesium run every night for a while - even while at home.
Friday afternoon, Xander was asked if it was okay for the Department Director of UofM's BMT program to bring several medical students by to visit and talk about Xander's condition. Dr. James Ferrara first came by alone to make sure that Xander was feeling okay and not doped up. Shortly thereafter, Dr. Ferrara returned with 5 medial students.
Everything was going well… for a bit. Emilie received a huge compliment after accurately talking BMT "shop" when Dr. Ferrara asked if she was studying to be a hematologist oncologist (way to go Emilie). The students were amazed that Xander was so knowledgeable about his disease and was so proactive in his own treatment and recovery. Then something strange happened…something really weird.
|You will pass out when I say "pericardial effusion"|
When Xander and I were doing our interview with the K-12 beat reporter for AnnArbor.com regarding Xanderfest, she collapsed during the same part of the story. Danielle had to leave the room to get a glass of water and passed out and hit her head. We ran to her rescue but the damage was done. I guess talking about draining 410 ml off of a 9 year old kid's heart is overwhelming. I am so thankful to God in Heaven that Xander has had a smooth BMT thus far. WOW!
Today Xander's teacher, Ms. Tucker, is coming to learn to play Minecraft. Evidently, she is the last person in the third grade to learn to play :-) Watch out creepers and zombies when Ms. Tucker is in the house!
Not trying to jinx anything, but it looks like we did it. The next big test is on day +30 when Xander will have another bone marrow biopsy that will determine the engraftment percentage (VNTR). Beyond that, the next ninety days will be the most important regarding GVHD symptoms. Thank you all for your prayers - we feel them and it is working.
Peace and love to you all!