Although no one expected Xander to have a White Blood Cell (WBC) count so early… they're here! Every nurse and every doctor that worked with Xander gave him a "woot" or a knuckle bump or BOTH! We are so excited! We are so thankful! The joy in my heart is overflowing and I really can't stop crying as I write to tell everyone the good news!
Xander, however, is still transfusion dependent. Today he needed platelets as his body is chewing them up very quickly. There are a couple of reasons for this, but at this point, it is par that he is getting transfusions daily and sometimes multiple times daily. We hope and pray that the cell lines continue to reconstitute. Normally, white blood cells come first, then hemoglobin (RBC), and finally platelets. Translated, this means that the next forward motion we expect to see is the WBC count continue to increase while hemoglobin begins to hold levels from day to day ultimately eliminating RBC transfusions altogether.
IT'S HAPPENING AND WE ARE SO THANKFUL.
Le Dog (best soup on planet), we saw a van decorated with an important message - voteforbre.com. Currently, Bre has 66,000 votes and as we understand, has the most votes going into the second phase of the contest. Bre is a really cool and happy child who gives the most awesome hugs. We met Bre at Oxford Hyperbaric Center where she treats for inflammation reduction and well being. At the Oxford Kids Foundation Gala, Bre sold hugs non-stop - she is filled with love energy you can feel when you hug her as well as see in in her eyes when you meet her. GO BRE GO!
Argerios in Ann Arbor. I think that there are somewhere around a million fat grams and calories in each bite of the Alfredo sauce - it is sooooo yummy! As you can see, Xander thinks it is yummy, too. Xander ate an OMG portion as normally we split one order between the three of us.
Later in the evening, Xander, Emilie and I took a long walk in the arb. It was such a beautiful night - even at 10pm the temperture was around 65 degrees. Xander had to rest often and by 11pm, he wasn't feeling the greatest. There was no fever or troubleing symptom, just a general malaise and ill feeling.
When we got back to the room, I kept my end of the
Thank you everyone for you support. Keep your eye on Xander's Facebook page (facebook.com/xandersjourney) for updates throughout the day. For those not on Facebook, I will continue to fold the Facebook updates into the blog.
Peace and Love,