Sunday, June 10, 2012

Crossing paths or 1:1,000,000 meets 1:1,000,000

Everything looks to be a go for discharge tomorrow from the active BMT service at Mott Children's Hospital. We are not expecting and more nasty surprises like the pericardial effusion. Xander is eating some, pooping some, acting feisty (actually a PITA!), and all around seems ready to blow this pop stand!
So, wouldn't you just know that there is at least one more surprise this hospital stay? Xander and I just had the pleasure to meet Cheyenne and her grandma. Cheyenne has Myelodysplastic Syndrome. Specifically she has monosomy-7 that has mutated to AML. Cheyenne has has one failed transplant (not at the U of M) and is here to see if there is anything more that can be done for her.
Xander was very sweet an decided to stay in the play room with her instead of going out today. As Xander's dad, I am moved and proud.



  1. Going home! We are so happy for you! We hope you have a smooth transition tomorrow!

    Amazing that you and Cheyenne met! Xander, It was so kind and thoughtful of you to spend your time that you could have been outside with her. I'm sure being with you gave her and her family a lot of hope. I hope it was also good for you to meet someone who can truly relate to and understand your experience.

    Lot's of love to you all and prayers for continued strength and healing!


    The Lowensteins

  2. Of course, we wouldn't have expected anything less from Xander. Looking forward to seeing you soon!

    the Das family