We did find out today that Molly is NOT a match. We will know on or around Tuesday if there is a preliminary non-related doner match in the public database. They will be searching cord blood as well as the public databases worldwide. There are about 14 million registered doners.
We will be getting weekly blood draws to watch Xander's CBC counts.
Xander and I visited Gabe and his Grandparents for about an hour and a half. Gabe likes to play video games which is a special treat for Xander, too. Xander has blood work scheduled for early next week. We will visit Gabe again then.
We are starting the process to organize and fund a bone marrow drive. Each sample processed costs $54 through marrow.org. This is much less expensive than a private screening which ranges from $1200 - $2000+ dollars. We will let people know SOON how this will proceed. Mustard's Retreat (an Ann Arbor based Folk band) has already committed their willingness to participate - thanks David & Michael!
I'm excited to hear that Xan's Platelets are up a bit and that a transfusion isn't needed. You all continue to be in our thoughts and prayers.
ReplyDeleteLet us know how we can be of help with whatever is needed.
Hope to see you all soon,
Tom Gibson
People have been asking the significance of Mustard's Retreat… Well, The Yellow Room Gang was the first (and second) concert we ever took Xander to. We got him dressed to the nines and went to the Ark in Ann Arbor (I 'll post a few pictures). The Yellow Room Gang is an incubator for musicians in Ann Arbor. David Tamulevich also has a passion for hand made marbles and has shared his collection with Xander.
ReplyDeleteThanks for everyones Love…