Saturday, October 19, 2013

Severe GVHD

Good Evening,

The result of the biopsy is back and indeed Xander has a very severe case of GVHD in the lower intestine, more severe than the first time. We do not know why this has happened, only that it is very unfortunate and must be treated aggressively. He has not responded quickly enough to the increased Prednisone (he is up to 64mg per day). The unfortunate part is that he has to receive rATG, the same immune suppressant that he had during both transplants. This basically puts us back at step 0 in regards to immune system recovery. He will not be able to fight off any viruses, and most likely they will start to wake back up in his system. So all of the drugs he received to treat the viruses will most likely need to be used again.

We are trying to stay positive and use a lot of supportive therapies to recover his gut. He needs a lot of prayers and healing energy to get through this. The not being able to eat part is VERY VERY hard for him. He is able to have gum, so I got him 5 varieties to choose from. It didn't bring him much excitement though.

In a positive light, Dr. Connelly wants him in HBOT treatment as soon as possible. If he responds to the ATG over the next couple of days, then he will be able to get back into HBOT nightly because of the support of the Oxford Kids Foundation.

Thank you so much for all of your prayers.

Peace and Love to all of Xander's followers,



  1. Thinking of you guys Xander you're a trooper

  2. We're sending lots of love and healing prayers, thoughts and dreams your way!

    Love, The Lowensteins

  3. sending lots of prayers and hugs your way!!!! Miss you guys.

  4. Hugs and kisses from Minnesota.