|Home! and Hobbes is Happy!|
Xander was discharged from the hospital on 12/26, after having a super duper Christmas! Thank you all who helped create the magic of Christmas for our children. With the adopt a family and generous donations from all of you, we had a great day and have been able to keep our family going financially. We calculated that Xander was inpatient for almost 6 out of the last 9 months and it has been a huge financial burden that you all have helped to offset! Thank you. Here is the link to our fundraiser, and we have received many donations not through this site too. I wanted to share this screen shot with you to give you an idea of what this means for medical bills, and please note this is without this most current 3 month inpatient stay.
|2013 BCBS Claims - Oy My!|
Many of you have asked how we are affected by the Affordable Care Act... we were sent the dreaded letter from Blue Cross that our insurance was going to end. Then they sent the letter again (thought I should act now), and then they even called to find out if we had gotten the letter. I was happy with their follow through. I worked with our agent and got a similar plan to what we have now, however, the deductible/max out of pocket increased over 300%! We are not sure how this is going to pan out for 2014, but thankfully Xander is covered by MIChild state coverage (still have to pay per month), so that helps a ton with the out of pocket hospital charges. Now so that we don't get sick... lots of Wellness Formula and Yoga (need to do lots more of this).
The past few days we have spent getting adjusted to doing all of Xander's care on our own again and getting caught up on our home life. WOOT! And getting some fresh air...
His menu now includes: Brown rice in all forms (rice cakes, rice crackers, rice pasta, rice noodles, sprouted rice), eggs (up to 8 per day), parmesan cheese, spinach, carrots, turkey slices, bananas, dark chocolate, blueberries, potatoes and Orgain. We need him to be drinking 3 Orgain per day in order to meet his nutrient requirements daily. This is the highest quality, most caloric dense, organic liquid food that we could find as a supplement. It tastes WAY better than Ensure and is made with high quality ingredients. And, the hospital prescribes it for him (it's $4 per bottle retail). I have been able to make him real dinners from these ingredients - smiles abound!
Xander has really enjoyed cooking his eggs and eating a lot. He has has easily gained 5 pounds since last week and is just simply enjoying the foods he can eat. I have been keeping the cupboard stocked for him. Keeping him up and moving is really important to a speedy recovery and he enjoys his friends a lot!
|Walk with George at County Farm Park|
We are looking forward to a January filled with being home and not on 7 East. Come on Xan, we know you can do it!
You all have been absolutely AMAZING to our family - we are so grateful!
|Molly and Aunt Katie - we love you!|
Peace and Love to all of Xander's followers,
So glad Xander is home again! Best wishes to you all for the coming year!ReplyDelete
Xan Man... we are so very happy you're home, once again. Please stay healthy and happy.ReplyDelete
Grandpa Howie and Grandma Rhondi