The CMV results are back and we are super pleased to report that the CMV is detectable but not quantifiable (zero) - This is exciting news and just what we were hoping for. Unfortunately, we are not going home quite as soon as we would have hoped. That's okay though, third time's a charm!
Dr. Connelly is covering all of the bases in regards to Xander's GI issues. He went NPO at 11am this morning and will stay that way through tomorrow morning. We will see if the diarrhea stops (so far, it has lessened a lot). The goal is to isolate the GI issues as a bug or as GVHD. If he shows significant improvement by tomorrow morning, then we will allow him to drink some water and see how that goes. Otherwise, if the diarrhea persists, they will take him in for an upper and lower intestinal biopsies on Wednesday to determine whether it is GVHD or not. Aaron and I speculate that the gut issues are related to the oral steroid that he was switched to, but this is just our parental feeling. We will see where it goes over the next 24 hours or so.
These types of symptoms are all part of what we have to work through over the next year as his immune system changes and develops. There will be many more stomach bugs, I'm sure, and each one will probably bring with it a trip into the hospital. At least for this one, we were already here! A big bonus (which I think Aaron mentioned a while ago) is that while we are still inpatient now, we are considered ACTIVE BMT: this means SPECIAL treatment and SPECIAL nurses. Xander likes special treatment and special nurses :-)
Please send Xander lots of loving thoughts and prayers over the next 24 hours, he will need all of that love and energy to nip this one in the bud!
Peace and Love to all of Xander's followers,