Saturday, April 27, 2013

Sunrise view makes the day

Good Morning,

Xander had a very rough day yesterday during his first dose of rATG. This stuff is nasty! He had a lot of issues like nausea, vomiting, headache, aches, high fever, etc. Tammy made a good call to slow down the infusion and he was able to rest a little, and his fever dropped. By late last night, he was able to get some rest and sleep. Only 2 more doses...

He just had his last dose of Fludarbine this morning, so only 1 new chemo agent to go - Melphalan tomorrow.

We had a special visit on Thursday from one of our clients... In one day, St. Pat's School raised over $3,000 for Xander during a dress-down day. We are speechless! We are so grateful for all of you that reached out to help us. Thank you!

Looking forward to Xanderfest at The Neutral Zone, tomorrow.

Peace and Love to all of Xander's followers,


Gnomes on Rosewood Street patiently waiting for Xander to come home


  1. Hi Xander,

    We're so sorry that yesterday's chemo was so rough. We hope today brings some relief, we're sending you all of our strength and love.

    The Lowensteins

  2. Just wanted to let you know that I'm thinking about you, Xander... hope the next round is easier on you.

    Prayers being sent all the way from NC!

    ----Freda Alley

  3. Dear Emilie, Aaron, Xander and Molly,

    We were in temple today and had the chance to sing the mi shabeirach-prayer for healing-for you. Here's a link to Debbie Friedman singing the prayer, she wrote the melody that we sing in our temple.
    We think it is a beautiful prayer, we wanted to share it with you.


    Ethan, Margo, Ruby and Jasmine