I am reaching out for all things positive right now, from billboards to bumper stickers, and from great friends to thoughtful reads. I am working very hard to be in the moment and make the people around me feel good, all while processing very difficult emotions that are hard to describe in words. I realize the transformation of our lives is happening when there is outstanding work to be done, but there are no work hours available in the day....
We started at 7:30 this morning with phlebotomy. Xander actually looked forward to it this time, because, well of course, he has lines now - NO MORE POKES. READ MY LIPS, NO MORE POKES! (at least for now) This has changed his whole demeanor and has put him in good spirits entering the final laps before transplant.
|Break before the storm hit|
We were thankful to get a short break outside to fly an airplane and enjoy the breeze this afternoon. Xander really wanted LeDog for lunch (his absolute favorite soup comes from here), so we enjoyed that - yum!
|Battle at Transfusion Clinic|
Xander's hemoglobin had fallen to 7.3, although he was not looking nearly as grey as he usually does below 8.0. Thank you to all of the transfusion nurses, you have been very helpful and kind during all of Xander's pokes (especially Susie). Today, Susie wanted to make sure that Xander knew how to belch the A-B-C's. That made us laugh, and of course he was able to perform that huge undertaking for her right then and there. At least he said "excuse me" 26 times after.
This was probably the hardest part for me... watching him sign on the dotted line. He was very sweet with Mandy and asked her if on this line he was supposed to sign the cursive name or the printed name?
|The Official BMT Signing|
We found out today that Xander's Melphalan dose is so strong that it will only take ONE, 2-hour infusion to have a complete myeloablative response in his bone marrow. ugh.