Good Evening, Emilie here…
Well on our way to Mayo Clinic now, but not there yet… we
always leave at least 3 hours late whenever we go on long trips, so this is not
surprising. Hobbes was satisfied with that though because he got more playtime
with Xander. We are so thankful
for the love and support we have received during this time. So many of you have
come together to make this easier on us emotionally, financially, logistically
and spiritually. Thank you for all you do to make our lives more balanced as we
move down this path.
As we talk more with friends and acquaintances about
Xander’s condition, there are many aspects that are so compelling to different
people. Lately, we have received recommendations to call all three main
broadcast television stations here in Detroit to get the story out and see if
it generates support. We have started to think about how this might affect our
family, Xander’s condition, and overall outcomes. We continue to talk about it
daily and will most likely pursue a couple of the direct contacts when we finish
meeting with the doctors at Mayo Clinic and Detroit Children’s in the next few
weeks.
We are highly anticipating all of the different ideas that
may come during our visit here. We are hoping and praying for the best outcome
for Xander, and a little miracle too.
Update at 00:38 or 11:38 here
Couldn’t post to the blog when I wrote the above note
because we were on the EDGE network – kinda like up north Michigan, spotty
coverage. It’s all good. Minneapolis is a really cool city and this condo is in
such a beautiful location – oh my! Can’t wait to see it at sunrise.
I have all 4 of you on my mind often. Lots of prayers and love. 3rd time's a charm!
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