Still waiting for tests

Good Evening,

All-in-all Xander is doing well. He is getting some liberty from the IV pole, his friend Gabe showed up with an infection this weekend and got the room right next to us! This was a great time to socialize, had some nice discussions with his family and they played all sorts of different things. Gabe and Xander influence each other in positive ways! Gabe went home today, so his stay was good and short.

Update on Bone Marrow Transplant:

1. Tests confirmed our suspicion that Xander's stored cord is perfect. It sits patiently in Boston waiting for the next move
2. Xander had bi-lateral bone marrow biopsies on Friday. They have come back with the results - there is no living bone marrow. We are waiting for the final, additional tests to come back next Monday.
3. If indeed the donor cells have failed, this leads us down the path of Xander getting his own cord next.

It looks like we will have a "final" plan in place by next Monday. Until then, he is making the most of being without ANY White Blood Cells (like 0.0). This means high risk of infection(s) and ultra-nervous parents.

He is concentrating on eating and getting up out of bed on a daily basis.

His insane itching attacks are at a minimum and nightly baths help keep his skin clean and healthy.

Aaron and I are on a good schedule and just got our carpets cleaned at home (oh, this is so nice...).

Peace and Love to you All and thank you (with all our hearts) for hanging in there with us.


Tracy... thank you for ALL you do!